Born at 24 weeks gestation with only an 11 percent chance of survival, he spent the first 250 days of his life in the neonatal intensive care unit (NICU) at UK Healthcare. Diagnosed with cerebral palsy, TJ had to learn to live with the challenges of a tracheostomy, ventilator and the constant risk of respiratory complications. In the face of adversity, the Buckles family responded like superheroes, with unwavering love and advocacy.

Amidst the whirlwind of medical appointments and treatments, Liz, TJ’s mom, found herself navigating a maze of uncertainty. But she refused to let adversity get in the way of TJ’s care. With the help of BCN’s Bright Path Pediatric Palliative Care Program, she embraced her role as an advocate for TJ and has used her knowledge and influence to help other medically complex children and families.

“Bright Path helped us find resources and connected us with appropriate providers, as well as helped us find and fill out necessary waivers,” Liz said. “Every step that the parent of a medically fragile child must go through, they’ve walked me through. I can be the advocate for TJ, but they are the advocate for me!”

Prior to Bright Path, the Buckles family struggled with many daily challenges. Inconsistent nursing care meant that Liz often had to juggle her responsibilities as a vet clinic manager with caring for TJ, sometimes carrying him around in a backpack carrier while she worked.

With support from Bright Path, TJ receives tailored healthcare, resources and education that has improved his quality of life. TJ turned three this spring and will have his trach closed and removed, marking a significant milestone in his journey.

"Hope shines brightest in the face of adversity,” Lauren Samuels, Bright Path LPN, said. “TJ's journey embodies the essence of hope, reminding us that even in the darkest moments, there is light.”